Getting unplugged is
always something I look forward to. Finally that stupid pest of a
pump is someone else’s problem and I no longer have to worry about
the hose getting caught up and yanked from my port. Finally I can
start to flush out the poison. Finally the pain and discomfort can
start to clear up.
Four days of
constipation followed by a couple of normality and then finally a
storm of diarrhea. Still it beats the last time I visited Portland
and got food poisoning. That was a fun trip. Except for that first
day in Portland. And the week or so of cramps and shits.
You know what I
fucking loved about Portland? Powell’s books. A book store that
takes up a full block. And it was packed on a rainy Sunday. For
that Portland, I will forgive you for all the conversations I had to
endure with strangers.
Maybe it will help that my dosage has been cut by about a fifth. I’m not really noticing much of a difference in my daily symptoms. Moderately cold things still hurt to the touch. And let me better define cold. I don’t mean the depth of an arctic winter level of cold, where your hands would freeze, blacken and drop off. I mean this thing came out of the fridge, normally I could handle it for hours with not a jolt of pain – now my hands and throat are stinging.
Hey, that room
temperature water that is so blandly tepid? That is going to make
your throat feel like it is seizing up. And you better let that
yogurt sit out for a while before eating it. This week, amongst
others, I was set across from a Vietnam vet. We didn’t interact,
but you get to overhear things about other people’s experiences
regardless. I’m bitching about discomfort when it comes to the
cold, but he had the total package, fatigue mixed with loss of
appetite.
Hard to complain
about my stomach pains as he fights a bigger fight. I am relieved
that my path isn’t that much more difficult. I don’t know how
much willpower I possess to force myself to eat when I really am not
feeling up to it – not if our positions were switched.
I had a conversation
in my off week with a fellow partaker of the chemo drugs. We swapped
symptoms before my nurse returned and passed on the platelet counts.
Or, if it doesn’t fade, this could be my life from here on out.
Forgot to ask if his eyes really hurt when he sneezes, but on the
whole we had a venn diagram of shitty experiences to compare and
contrast. I could be facing two years of sensitivity to the cold.
Two years before it might fade.
Permanent nerve
damage indeed.
We had storms over the weekend. Storms and hot weather. Hot and humid weather. The kind of weather that made me happy that my roommate had plans that meant not being in the apartment, leaving me free to lie about in front of a fan in me undies. Yeah, that is almost a brand endorsement.
The miasma of weather did a fine job of robbing me of what little sleep I managed to claim. Friday night, fifteen minutes after falling asleep I awoke to discover that heart racing against the incoming storm. Adrenaline rush. But it did manage to get me up in order to close the windows.
We had storms over the weekend. Storms and hot weather. Hot and humid weather. The kind of weather that made me happy that my roommate had plans that meant not being in the apartment, leaving me free to lie about in front of a fan in me undies. Yeah, that is almost a brand endorsement.
The miasma of weather did a fine job of robbing me of what little sleep I managed to claim. Friday night, fifteen minutes after falling asleep I awoke to discover that heart racing against the incoming storm. Adrenaline rush. But it did manage to get me up in order to close the windows.
Get me up and then
keep me up. That is the worst. Not being able to get back to sleep.
Come Monday I am usually exhausted. I don’t feel physically
fatigued. Maybe a little less stamina than before. But for the
weekend of and a few days after chemo, I’m nearly dead to the world
as my brain fogs up.
Did we have plans on
sunday? A true pity for I shall be sitting about listlessly whilst
napping.
I’ve finally
shaved my head. I had grown tired of it looking like our national
forests after the Republicans auctioned off all the timber rights at
a bargain price. Looking at myself in the mirror at work, where I
have “better” lighting, was just depressing. Vainly attempting
to keep something from slipping through your fingers seemed a mite
pathetic to me.
This is the first
time in my four decades of existence that I have ever had my hair
this short. Now I look like a cut-rate Lex Luthor. Though I am
slowly getting used to the sight. Maybe this year I’ll dress up as
Henry Rollins for Halloween. Though I’m going to need to do a lot
more push-ups to get something like his physique.
How am I? I’ve
had better years.
But I find that I’ve
had worse years. But Epicurus said that even in the depths of
illness, pleasure outweighed the pain. I find this to be true, but I
do have manflu cancer and chemo.
No, I’ve had a
couple worse years. The second to the contender being a few years
back when the company I worked for expanded drastically, while
refusing to take on more help. I spent so many 12+ hour days working
open to close to help keep up. And failing. I made six grand in
overtime that year as my days were: get up shower and then eat, go to
work, and then come home eat and go to bed.
Taint much of a
life. But I did manage to make a dent in my student loans.
I spent a year being
angry at our management for not doing something to rectify the
situation, Why would they ignore that problem? Sometimes it still
pisses me off. It is in my nature. But I have learned to quickly
let it go. It doesn’t mean anything.
The worst year of my
life came after I graduated college. Not that first 12 months, but
the twelve following. The first year after graduation I spent most
of my days writing. I would go to bed in the morning excited for the
coming day, and then get up excited to get back to work. It. Was.
Awesome. After I got my morning’s writing done, I would usually go
for a walk. Summer or winter, the same. Then come home and write
some more.
I was going to be a
professional millionaire novelist.
Except that never
happened. I put in the hundreds of hours of work to create this
thing. And nothing ever came of it. One of the two biggest
disappointments of my life, one that I’ve whined about more than
once here. And will probably bitch about again.
After that grand
year of hope, I ran straight into the wall of nope. I moved away
from the city that I had lived in all through college. I found
myself in a place that I didn’t in the least care for. Do you want
to publish my novel? No. Do you want to publish my novel? No.
Slowly that dream was just wrenched out of my hands as I realized I
was never going to be able to afford to write full time. There was
no escape.
I got a job making a cut above minimum wage for a pharmacy with a high turn-over rate. Seriously it was around 20% at the height of the fucking depression. I spent my days taking boxes out of boxes, putting stickers on them. Taking those stickers off of the boxes, and applying new ones, putting them into other boxes and then putting different stickers on the other boxes. I worked in shipping. The job was absurd and boring and pointless. It ate at me. I was making just enough to survive as my student loans crushed my soul.
I got a job making a cut above minimum wage for a pharmacy with a high turn-over rate. Seriously it was around 20% at the height of the fucking depression. I spent my days taking boxes out of boxes, putting stickers on them. Taking those stickers off of the boxes, and applying new ones, putting them into other boxes and then putting different stickers on the other boxes. I worked in shipping. The job was absurd and boring and pointless. It ate at me. I was making just enough to survive as my student loans crushed my soul.
They say to take
what you want and pay for it. It took me ten years to pay for
college. It may have been worth it.
I became the head of
my department. Not through skill but more by winning through
default. Al that meant was I got $0.32 more an hour and bitched out
by management that ignored me when I made requests to make the job
easier.
I was depressed. A
lot. And fell back on my drug of choice, MST3k. That always made me
feel good again.
Hail the crew of the
Satellite of Love.