Thursday, July 25, 2019

5/8ths is better than half.


Getting unplugged is always something I look forward to. Finally that stupid pest of a pump is someone else’s problem and I no longer have to worry about the hose getting caught up and yanked from my port. Finally I can start to flush out the poison. Finally the pain and discomfort can start to clear up.

Four days of constipation followed by a couple of normality and then finally a storm of diarrhea. Still it beats the last time I visited Portland and got food poisoning. That was a fun trip. Except for that first day in Portland. And the week or so of cramps and shits.

You know what I fucking loved about Portland? Powell’s books. A book store that takes up a full block. And it was packed on a rainy Sunday. For that Portland, I will forgive you for all the conversations I had to endure with strangers.

Maybe it will help that my dosage has been cut by about a fifth. I’m not really noticing much of a difference in my daily symptoms. Moderately cold things still hurt to the touch. And let me better define cold. I don’t mean the depth of an arctic winter level of cold, where your hands would freeze, blacken and drop off. I mean this thing came out of the fridge, normally I could handle it for hours with not a jolt of pain – now my hands and throat are stinging.

Hey, that room temperature water that is so blandly tepid? That is going to make your throat feel like it is seizing up. And you better let that yogurt sit out for a while before eating it. This week, amongst others, I was set across from a Vietnam vet. We didn’t interact, but you get to overhear things about other people’s experiences regardless. I’m bitching about discomfort when it comes to the cold, but he had the total package, fatigue mixed with loss of appetite.

Hard to complain about my stomach pains as he fights a bigger fight. I am relieved that my path isn’t that much more difficult. I don’t know how much willpower I possess to force myself to eat when I really am not feeling up to it – not if our positions were switched.

I had a conversation in my off week with a fellow partaker of the chemo drugs. We swapped symptoms before my nurse returned and passed on the platelet counts. Or, if it doesn’t fade, this could be my life from here on out. Forgot to ask if his eyes really hurt when he sneezes, but on the whole we had a venn diagram of shitty experiences to compare and contrast. I could be facing two years of sensitivity to the cold. Two years before it might fade.

Permanent nerve damage indeed.

We had storms over the weekend. Storms and hot weather. Hot and humid weather. The kind of weather that made me happy that my roommate had plans that meant not being in the apartment, leaving me free to lie about in front of a fan in me undies. Yeah, that is almost a brand endorsement.

The miasma of weather did a fine job of robbing me of what little sleep I managed to claim. Friday night, fifteen minutes after falling asleep I awoke to discover that heart racing against the incoming storm. Adrenaline rush. But it did manage to get me up in order to close the windows.

Get me up and then keep me up. That is the worst. Not being able to get back to sleep. Come Monday I am usually exhausted. I don’t feel physically fatigued. Maybe a little less stamina than before. But for the weekend of and a few days after chemo, I’m nearly dead to the world as my brain fogs up.

Did we have plans on sunday? A true pity for I shall be sitting about listlessly whilst napping.

I’ve finally shaved my head. I had grown tired of it looking like our national forests after the Republicans auctioned off all the timber rights at a bargain price. Looking at myself in the mirror at work, where I have “better” lighting, was just depressing. Vainly attempting to keep something from slipping through your fingers seemed a mite pathetic to me.

This is the first time in my four decades of existence that I have ever had my hair this short. Now I look like a cut-rate Lex Luthor. Though I am slowly getting used to the sight. Maybe this year I’ll dress up as Henry Rollins for Halloween. Though I’m going to need to do a lot more push-ups to get something like his physique.

How am I? I’ve had better years.

But I find that I’ve had worse years. But Epicurus said that even in the depths of illness, pleasure outweighed the pain. I find this to be true, but I do have manflu cancer and chemo.

No, I’ve had a couple worse years. The second to the contender being a few years back when the company I worked for expanded drastically, while refusing to take on more help. I spent so many 12+ hour days working open to close to help keep up. And failing. I made six grand in overtime that year as my days were: get up shower and then eat, go to work, and then come home eat and go to bed.

Taint much of a life. But I did manage to make a dent in my student loans.

I spent a year being angry at our management for not doing something to rectify the situation, Why would they ignore that problem? Sometimes it still pisses me off. It is in my nature. But I have learned to quickly let it go. It doesn’t mean anything.

The worst year of my life came after I graduated college. Not that first 12 months, but the twelve following. The first year after graduation I spent most of my days writing. I would go to bed in the morning excited for the coming day, and then get up excited to get back to work. It. Was. Awesome. After I got my morning’s writing done, I would usually go for a walk. Summer or winter, the same. Then come home and write some more.

I was going to be a professional millionaire novelist.

Except that never happened. I put in the hundreds of hours of work to create this thing. And nothing ever came of it. One of the two biggest disappointments of my life, one that I’ve whined about more than once here. And will probably bitch about again.

After that grand year of hope, I ran straight into the wall of nope. I moved away from the city that I had lived in all through college. I found myself in a place that I didn’t in the least care for. Do you want to publish my novel? No. Do you want to publish my novel? No. Slowly that dream was just wrenched out of my hands as I realized I was never going to be able to afford to write full time. There was no escape.

I got a job making a cut above minimum wage for a pharmacy with a high turn-over rate. Seriously it was around 20% at the height of the fucking depression. I spent my days taking boxes out of boxes, putting stickers on them. Taking those stickers off of the boxes, and applying new ones, putting them into other boxes and then putting different stickers on the other boxes. I worked in shipping. The job was absurd and boring and pointless. It ate at me. I was making just enough to survive as my student loans crushed my soul.

They say to take what you want and pay for it. It took me ten years to pay for college. It may have been worth it.

I became the head of my department. Not through skill but more by winning through default. Al that meant was I got $0.32 more an hour and bitched out by management that ignored me when I made requests to make the job easier.

I was depressed. A lot. And fell back on my drug of choice, MST3k. That always made me feel good again.

Hail the crew of the Satellite of Love.

Tuesday, April 23, 2019

TLDR: I have Cancer. It is very curable.


Sinclair Lewis nailed me with a single line describing one of his characters: She lived in mortal dread of being diagnosed. That was a character with whom I felt a kinship. That is part of my psyche wrapped up in a single line. I am a borderline hypochondriac. Not a germaphobe mind, I have an immune system to keep the bugs at bay, I just fear my body betraying me.

This is part of the anxiety. I’m hyper-alert to any twinge in my body. Back in 4th grade our class read a story about a boy and his dog entering a race to try and save their family, I don’t remember. What has been burned into my brain was when the dog dropped dead just before the finish line. My teacher announcing that his heart had exploded.

What’s that? Heart exploding from running too hard? That fear packed itself into the back of my very soul and I’ve been afraid of the same thing happening to me ever since. No doubt it played a part in my taking up video games and reading over sports – although I always did hate to practice. I think I was a sensitive kid.

On my worse days at my job, when I was feeling my most hopeless and depressed, I would day dream about being diagnosed with terminal cancer. Then I would say fuck this place, quit my job, and go and do some of the things I really wanted to do with my life in what-ever time I had left. I’d cash out my 401k and get to do some traveling.

Macabre, I know. But it isn’t about dying. I’m just sick of worrying about the future. And the present. The anxiety is waring. Why not make a change? Oh I’ve tried, and hit dead ends. Some of my own making, others not.

A few years back we visited Taos New Mexico as a family, and we went to see the Rio Grande gorge and cross over the bridge on foot. I got nearly half-way out before my body refused to move any further. I just stopped. 800’ down, and a 4 foot tall steel barrier between me and that drop. I could not make my feet take a single step further.

Applying for jobs is like that. There are no real images of doom. Just a vague sense that blocks my way like a fog. And so I imagine not having to worry about any of that anymore(another reason the lotto is so damn enticing).

So I started shitting blood. Literally.

After the whole thing with the wisdom teeth and the dentist and what-ever, I decided to be a bit more of an adult about my health, and after a couple weeks of that complaint not quieting down, I visited my Primary Care Physician. Dr Google MD.

Dr Google is in my price range. Dr Google is always there. Dr Google listened to my questions and gave me answers. I had hemorrhoids, or Chron’s disease, or food allergy(have you been eating beans and lentils or dairy or wheat?). After several days of careful research I was able to eliminate Ovarian Cancer. Dr Google had one retrain. It could be any of the above but don’t rule out the old butt-cancer.

Either way it was probably caused by vaccines. And I could swallow these lovely homeopathic capsules, they’re made of cancer, except so diluted by water that there is a statistically negligible chance that any of the cancer is still in there. Also, put this crystal into your anus to align your chakras. And pray to the Merciful Lord Jesus to take your cancer away.

It got to the point where the region around my tailbone would hurt after standing in place or sitting for any period of time. Walking was ok. But my job often requires me to stand at my work station. But there was no other source of pain to speak of. This led me to suspect that I had hurt my tailbone at one point. Or perhaps it was a hernia. Dr Google has suggested a lot of possibilities. Delightful.

Hurting long hours while standing at work actually got me off my ass, so to speak, and moving towards getting myself fixed. Like an adult. Which was something I was equally worried about, as I’ve never been in the medical system. I’ve had insurance for most of my life since graduating college, but have never used it. No matter what my crazy brain was hallucinating was defective with my still warm corpse.

Boosters on Butt-cancer causing vaccines aside, I’ve not been to a Doctor since I was a child.

I only had a general idea of what I needed to do.

Now let me explain the American medical system for those of you who have not encountered it. At least as best as I think I understand it. Most of us engage private insurance companies, most often through our place of work. Insurance is like the evil hated Socialism, but where there is a profit motive for large companies.

They don’t save money by shorting the shareholders.

The insurance companies negotiate contracts with local(hopefully) hospitals, Doctors offices, and pharmacies.

You can’t just show up at a colon specialist and announce “My Butt hurts! Fix me!”

They’re not going to take you in and examine you and say “Well we think we found the problem. You had this little winged pony figure lodged in your colon. Any idea why?”

“Oh that. That’s Princess SparkleWings. She was probably exploring the forbidden Cave of Mystic Wonder! That incorrigible kid!”

“And this one?”

“Princess Sky Dancer. They’re best friends and go everywhere together. Sky Dancer is the cautious one, and SparkleWings is always dragging her friend along on some crazy adventures. Guess this time they got in a bit over their head.”

“And the rest of these?”

“Rescue teams One through Three. The cream of the crop. The Forbidden Cave of Mystic Wonders is a dangerous place. Guess that is why it is forbidden. The City State of Ponyapolis owes you a debt of gratitude.”

Nope, doesn’t work that way. Firstly, do you have insurance? Secondly, does that Dr’s office take your insurance? Finally, you need a referral. Usually from your Primary Care Physician – Dr Google MD does not count. Sure, you might get in without insurance, but medical bills in the United States would break most people. Often even if they have the insurance. Bull. Shit.

An urgent care clinic does. Urgent care is like an emergency room at a hospital, for lesser forms of emergencies. Not sure how they break down, but I also believe that they’re a less expensive option. So that’s where I went, with the expectation that I had a hernia. Where did I get the hernia? I refer you to my previous posts about Rowsdower, my bus.

Walking into an urgent care clinic is like walking into a Soap Opera half-way through. What was up with the tall, cute, tattooed redhead? Or the colorful trailer-dweller who was experiencing all the abdominal pain ever. Not to mention her two friends. The entire Hispanic family? I’ve always been interested in people’s lives, where they came from and where they were going, just not enough to actually try and talk to them.

I spent 2 and a half hours at the urgent care that night, finally getting in to see a doctor.

He was about 70 years old. He asked his questions, and I answered them as best I could. Finally he has me drop my drawers, turn my head and cough. Hernia and all that. Nothing there. Well, now turn around and assume the position. This was the part of the appointment that most people find traumatic.

“Would you do me a favor and find someone with small hands?” I asked as he reached for the large gloves.

“I have slender fingers!” He responded with pride. No sir. I have slender fingers. I have the fingers of a time-traveling aristrocrat who only stayed in this century after discovering video games. Oh, you’re off to hunt foxes? Well I shall be saving the princess. I say, did you know that if you stomp on a turtle and then kick it as a projectile, you switch off most of Newton’s laws of motion? Capital stuff that what what!

No, he had the hands of a man who only took up medicine as a side-gig while working his true passion on the family farm. The women in his life might have found his hands impressive. I found his hands

“Don’t worry, I’m not going to insert the entire hand!” He said jovially.

“That’s good, cause there are places that charge extra for that.” He laughed and then probed my rectum with one of those giant fingers. Telling me to take a deep breath and try relax as he did.

Look. I learned about myself that day. I would never make a good gay man. Something I long suspected. There will be no engaging in the butt-stuff. Giving or receiving. Just no. Unless you’re into it Ladies, but only on special occasions like your birthday, or Guy Fawkes day.

With a visit to the urgent care under my belt, I was able to move on up the chain, and they referred me to a specialist. Early the next week, I got a call and made an appointment. Which lead me to having a second man in less than a week put a finger in my rectum. Some out there might be jealous of this accomplishment. I think I’d rather have my wisdom teeth out again.

“I know that Cancer is always in the back of your mind...” The good Doctor began.

Pause right there. Cancer was at the forefront of my mind. Being one of the .008% of people who die during the colonoscopy has been at the back of my mind. Why did I worry about that? Because I’m the kind of moron who buys lotto tickets.

But who starts bleeding rectally and doesn’t think cancer? What are your other options? “Oh, I must have been really popular at that party last night!” Or perhaps “I really shouldn’t have eaten that Indian food that I found in that dumpster at Chernobyl!”

“...But cancer isn’t very likely. Possible, but not likely. I didn’t find a mass, but I didn’t probe that far in.(probably because I jumped in pain when he passed my tailbone) Really I think it is an autoimmune condition. (he said the name, but I immediately forgot it, pondering the above question – I am not good at adulting).”

Finally we got to the point of it. It was time to get my first colonoscopy. About a week and a half later. Joy. A week and a half to stew. One one hand I’m about to pay a lot of money to have someone insert an object into my anus. Or conversely, an acquaintance is about to drug me and probe me. Either is a plot to a story that I would rather avoid.

The PEG infusion claimed to have lemon flavor mixed in. I was afraid that it would taste like Pledge. But no, it was merely the promise of lemon flavor. Like a fart in a super market. It did little to mask the sensation of drinking vaguely salty and oily water, AKA Mountain Dew, that was the PEG. I rate it 2 stars out of 10. Only real Crystal Lite is worse. I had a gallon of this nectar all to my own.

The instructions were to drink an 8 oz glass every 15 minutes, up to half of the gallon. That is 8 full glasses, about the amount of water that a grown adult is supposed to drink in a day. Mind, If you throw up, wait half an hour and try again. Then, after you did that, get up early and start again the next morning, at least 5 hours before your appointment. Wooh! Spread the joy around! Don’t spend all that in one place. Other ironic uses of cliches in the same vein!

I began to drink. It made my intestines gurgle and it raced through. My insides cramped and I nearly gagged numerous times as I drank. But I choked the lot down. One swig at a time.

All that water is coming out somewhere. And that somewhere isn’t the usual orifice. The end result is about what would happen if Sam Raimi ever got around to directing German Fecal porn. To the point that I tossed aside my belt off after the first instance of the evening, and considered discarding my pants as well, just to have fewer things to muck about with in my race to relief. I do have a tendency to race the train, so to speak, and was fortunate not to end in a pair of ruined underwear, and jeans, and the carpet. This time.

That was my evening. And then, when I finally got to sleep, the night was over almost before it began, and it was time to get up and repeat the above process. The worst part of waking up is a prescription strength laxative in your cup.

My folks, bless them, came down to be with me during this. My Grand Parents give them enough to worry about in their retirement. They shouldn’t need to worry about their grown adult son. But they’ve both been through the procedure and survived intact. That calmed my nerves some.

I almost expected to be greeted with the following “Well, this is the twin of the camera on the Hubble telescope. NASA uses the one just like it to explore the depths of time and unwind the mysteries of the universe. We are going to cram it into your colon, where no man has gone before. Check, where two doctors and numerous of little pony toys have gone before. Cheers!” - that would have felt right.

As they took my vitals, my legs were shaking. Not sure if it was cold or fear. Probably a little of both. I tried to joke around, it is what I do, even when worried. I couldn’t bring that together, too much pressure. Then they began the drugs. I went down almost instantly. I recall them chattering a bit as I faded, and then I just woke up. That is kind of blurry. Was I still in the operating room? Or had they wheeled me back to the ward. I remember eating the crackers and drinking the water that the nurse gave me and my folks were there.

The Doctor stopped by and gave us the results. They found a mass and took a biopsy. That was it. No autoimmune disease. No hemorrhoids. Everything else looked healthy. Except for a large angry mass that was choking my rectum.

Then we were free to go. I got up and got dressed. Felt tipsy and groggy. And then went home. The folks got us Chinese takeout and we toured the neighborhood, looking at the old Victorian houses. Mostly I wanted to get out and walk in the nice weather. They found a mass.

Fuck.

We had mexican for dinner and then the folks went home They offered to stay overnight – but they also have my Grandmother to take care of. I told them to do that. They let me know they were there for me. I never expected anything less. If I had had my way, I would have kept them out as long as possible and saved them the worry. I was feeling calm and proceeded to enjoy the rest of the evening as best I could.

The next day was both better and worse. I felt fine when I woke up, until I went to pass gas and nearly filled my shorts with blood. Lots of blood. Freaking me out levels of blood. I passed on most of breakfast that morning, and visited the toilet several more times that day to pass blood. Called the Dr and they said blood was normal. Not sure if they meant what I was passing.

It’s hard to make jokes about swinging between anxiety and calm as you try to focus on the mundane. I did so. Finally got around to getting those Fiber Gummies ordered. They actually taste pretty good. People asked how my colonoscopy went. I told them.

And then came the phone calls. Not the one I was waiting for, with the biopsy about the mass. No, I was being scheduled for a CT, a MRI and a consultation with a multi-specialist crew for the cancer. First came the CT, the following morning. I would need to pick up the contrast liquid and follow the instructions for that.

I put the MRI off until friday, hoping that the other results would come back and leave me clear of that. MRIs are expensive, and I didn’t want to be on the hook for that. Also, other people might need one. Don’t waste resources, it is a rule I try to live by, and often fail. But I try.

I left work early. I was feeling drained. Not physically. But emotionally. The phone call I was waiting for never came. I went home and then made the 2 mile hike uphill to the hospital. Felt good to move. Got home and had dinner and dallied around while waiting for until it was time to drink the new mix, which was a vaguely orange flavored pint of chalk. It went down rather smooth and I would take it over the PEG any day. I woke up at 1am feeling gassy as all get-out, probably from the latest batch of chemical, and went to the bathroom after a while to clear my bowels one last time. More blood. But not much, as these things have gone.

Then at 5 am the alarm went off, and I got up to start on the final regimen of orange chalk. Bathroom again. No blood and actually improved bowel movement. Oh yes, these things can be rated. Give that one a 3. Though on a curve with the last few weeks, a solid 8. Are you tired of poop jokes yet? Some of those have had to have wrecked-em. Eh? Eh?

The CT scan was nothing. The tech told me I was going to feel rather warm, and how it would go down, so there were no surprises. The dude was cool. 15 minutes in and out. So far I’ve been impressed with the staff across the board. My results came back and the rest of my body appears clear of any other growths – with the exception of the “large mass” starting around 4 centimeters from my anus up my rectum.

Note, this is the worst possible google maps location one can stumble upon. But Dr Google MD still recommends it.

I’m still holding onto the hope that I have a cyst. Though large mass doesn’t sound like cyst. But Dr Google says that Cysts can be considered a mass. And that I don’t know if the CT would distinguish. The only pain I feel is around my tailbone when I stand for long periods of time, or sit on it. The horrors of bad posture. And after the bleeding stopped, though, I felt better than I have in weeks. Keep holding onto hope about a cyst caused by a tailbone injury. Beats cancer. Even if it needs surgery, it won’t require chemo.

Went to work after the CT scan. Another day of waiting for the phone to ring. It didn’t. Except to verify the MRI and the Multi-specialist meeting. Both would be happening Friday. I got permission to take Friday off. I think everything is being expedited. Still hoping for a cyst. This seems to be the current branch that I am grasping to. I won’t fall into despair if it breaks, but damn I don’t want to explore that Forbidden Cave of Mystical Wonders. I’d prefer to stay in my lane with the Comfortable Couch of Nearby Video Games.

I finally called the Doctor’s office after I got out of work. They closed at the same time I punched out. The Doctor saw my call and returned it, but I was talking to my father at the time. I called back, but never managed to get him. I did ask for a page, but he was in surgery at the time. Went to bed without any results.

I set my alarm for 4:45 the next morning. My instructions were to give myself an enema some 2 to 4 hours before the MRI. That’s right. I get to give myself an enema. Scratch that bad boy off the bucket list. Wooh!

I tried to find a sexy pose for this. But, really, is there a sexy pose for giving oneself an enema? Don’t answer that internet. I am well aware of Rule 34. The instructions, which I read numerous times in order to get this all right, suggested either on your side or on your stomach with your knees tucked up underneath you. Neither of which were my first go to of curled up in fetal position and crying.

I cleared out the array of books and clothing I store in my bathroom. Just in case.

So I found myself lying on my side on a towel on my bathroom floor, a bathroom floor that wasn’t really constructed for the use which I was putting it to, and inserting the tip of an enema bottle into an angry little hole that I couldn’t see. I got a hole in one, for those of you who are keeping score, which is well under par might I add.

Bully!

The instructions stated that I was going to leave the enema inside myself while I remained the my assumed position until I felt a powerful need to defecate. Usually between 1 and 5 minutes – and if more than 30 minutes pass without any liquid reappearing, call a hospital because you can quickly become dehydrated. That’s a headline to look forward to. Dehydration via self-inflicted enema. He was so youngish, and probably had some stuff to live for.

I probably jumped the gun a bit there – I’ve had too many close calls as of late – and have developed a psychosis I fear. But as soon as the press began I got moving – and I found myself contemplating since the dawn of Indian cuisine, which is "oh whatever god who is listening, why is my butt-hole on fire?" Now had someone said, "there will be a slight burning and cramping," I would have responded "I don't want to do this, but alight, thanks for the heads up." - I was later told that nobody has ever complained about this side-effect.

Originally, I was intending to go back to bed for an hour after my latest stint in rectal self exploration. With the burning and cramping, that didn’t happen. I was up for the duration now.

The hospital is a short 1 and a half or 2 mile jaunt from where I live. So I wrapped up in my hoodie and walked up at 6 in the morning. The weather was cold and rainy. Something poetic about that. I signed in and watched the an older black gentleman with the gift – no power – of gab chat it up with anyone who seemed likely. “I was supposed to be here at 6:30 but I got to talking and forgot to sign in!” He announced to the room as he realized what time it was. The man was a force of nature.

I hope I didn’t look angry as I watched him gather steam. I have a case of resting bitch face and probably appear hostile. He was fascinating but better at a distance. I was completely aware of the fact that I wouldn’t have stood a chance. Not at that hour of the morning. Not with my state of mind.

I got called in by the MRI tech and she gave me the speil. Strip down and change into the gown and pj bottoms. You can keep your socks, but cover them with these footies. Leave everything in this locker and ring me when you’re ready. Oh, what kind of music would you like to listen to? You see, the hospital has a new music streaming service, and you can listen while you’re in the MRI. That is actually a nice touch.

I asked if there was any trance with female vocals - a combination of sounds that I find quite pleasurable and calming. But appearantly that is only a genre on youtube. Next I considered asking for GWAR. Because GWAR! But ended up just picking 90s dance music. It was upbeat – without having that angry edge of a Thrash-Punk band. Upbeat is nice. I’ll store that away for later.

The MRI machine resembles a plastic tube that is around 6 feet long and 6 feet high. The hollow center is around 2 feet across. Or less. I’m not very broad across the shoulders, but it was a tight squeeze for me. If I could change something about my body I would add a few more inches to my frame around the chest and shoulders. Bigger hands too. I don’t necessarily want Colo-rectal doctor sized hands, but larger regardless.

MRI technology has been around for longer than I have been alive, and creates magnetic fields and radio waves to form pictures of the inside of your body. I know this because I looked on wikipedia. It is cool as hell, but I might as well be a Juggalo for all I actually understand it. All I can tell you is that the machine is rather loud, and drowned out the music I was listening to. I ended up keeping my eyes closed, just in case I started to feel claustrophobic. Some folks also freak out when passing through the magnetic field for the first time. I don’t think I even noticed.

I assume that they have them either in multiple sizes, or they can adjust the diameter. I didn’t ask. Most people find the machine oppressive. I’m not generally bothered by tight spaces, beyond physical discomfort. What bothers me is being confined – or rather – constrained. Early on, back in my late teenage, constraint was what set off those first terrifying waves of Anxiety attacks. Being stuck at school, in class, without the freedom to just get up and go.

“Do you mind if we insert this gel into your rectum?” I was asked by the friendly MRI staff. Look lady, this isn’t the first thing to go up my butt this week. This isn’t even the first thing to go up my butt today. Have yourself a ball. She called in a male tech and I was told to try not to squeeze it out. I promised to do my very best, as I long ago learned to poop on command. Mostly.

Those urges are mostly under control, but I remember them. Dread them. To have a full on panic attack while lying in the MRI, during an expensive medical procedure. I was worried that I would freak out. So I kept my eyes shut and listened to Chumbawumba and whoever else made an appearance as the techs talked me through the exam. Breathe in. Breathe out. Breathe in. Hold your breath for 15 seconds. Ok breathe. Now there is going to be some loud noises that will last for 4 minutes or so.

By the time the last 15 minutes arrived, my stomach began to spasm. Whether from hunger or something else, I didn’t know. I just breathed deeply and waited as the seconds ticked by for the test to be over.

My mother came down to join me for the specialist meeting. She wants to be involved, to help her favorite(only) son. This kind and generous woman who mothers everyone who needs it. Which makes it difficult for me to follow my own idiom and sulk in solitude as I slog through the mire that lies before me.

We went out for lunch and then walked around down town in the dreary and windy late morning. Then on to the meeting.

As a side-stop I went to get blood drawn as I had been ordered. I signed in and was asked the same bevy of questions that always comes along, name, birthdate, address. All to make sure you are who you are. I went on autopilot as my mind wandered. Then I was blindsided with “Dr order?” I automatically responded “Yes. A doctor did order this.” No, they wanted my Dr’s name. Hah. Being up for long hours, with too little sleep as your mind keeps chewing on worries about the dark and unknown future, now that’s comedy!

The plebologist was cute and cheerful and chatty. Three factors that help distract a man from the fact that she is also essentially taking his life’s blood. Bonus, she was a gamer chick. So we briefly compared notes as she asked what has been in my docket as of late. I’ve wrapped myself in the NES games of my childhood, a warm, safe and happy time. Aside from that, Dark Souls 3. Why did I play that? Her brothers loved them, but they are like smashing your face into a wall. Well I love both the fantasy and post apocalyptic genres, and Dark Souls is a delightful combination of the two, except for the smashing your face into a wall part. She suggested Skyrim. I might have to take her up on that.


Back to the multi-specialist suite. And waiting. They called my name and led us to a corner office with a nice view over the city and a small roof that was covered in plants. It would have been pleasant under other circumstances. But now we were left to wait. Mom talked. A lot. I failed to hold up my end of the conversation, which is almost exactly what always happens. In the mean time the doctors were discussing the cases that they had before them, and going over test results, and then talking to the patients. Looks like I was last.

They had me fill out a form, the main question being between 1 and 10, how anxious did I feel. I went with a middle of the road 5. In the mean time after months of being steady, I’d dropped somewhere in the range of 4 pounds over the course of the week. That did not surprise me as I didn’t eat a damn thing for a day and a half, and had several light meals. Lazy and wanna get ripped? This may be the path for you!

My first visitor was a dietitian. She seemed to think that I was on the right track with my dietary habits and only suggested eating less corn kernels, popcorn and whole nuts, as the insoluble fiber might be inclined to irritate my innards. Bollocks? Giving up the popcorn that I never eat? Will my condition haunt me forever?

The Rectal surgeon was the second to arrive. He was positive and gregarious and would be taking over for my previous specialist, who no longer performed surgeries. But no worries, my new doctor was in charge and he had some good news.

I was super lucky!

I am not the first, nor will I be the last, to point out that having something terrible to happen to you automatically disqualifies you from being considered lucky. And the Doctor agreed, offering the modifier, that for the circumstances I am extremely fortunate. This could have been a lot worse.

I asked what it was.

“You have rectal cancer.” That. That. Those weren’t the words I was hoping to hear. But I was expecting them. Glass completely empty in all. But my symptoms had improved somewhat since the bleeding after the colonoscopy. The cyst? Fuck a goat on the White House lawn but did my day just get substantially worse.

Talk about a phrase that can change your life. It is up there with “I do” and “Congratulations You jus won the Election Mr. President!” With the exception that you can freely walk away from the implications of the others.

They have a plan. And all of my tests came back that I should live another 60 years. Mind you, this year will be a long one. And I would be losing my rectum. All of it. They were going to cut and paste my colon to my anus. And I’d have to shit into a bag for about 3 months. But I am lucky. No, compared to many of the people in my situation, I am fortunate. My body is betraying me, or a piece of it, but I am otherwise healthy and all of my scans and numbers look excellent. Sure there is a 10% chance that erections will be a thing of the past and I might have to spend the rest of my life shitting into a bag.

But don’t focus on that.

My voice broke a bit as I spoke. Not sure if anyone could hear the change, but I could feel it every time. All that unspoken fear that has been pent up for so long. I don’t know if I am feeling relief, terror, or grief. A mixture of the lot. Which is daunting for me as normally I chug along without a melange of emotions, just solid old neutrality.

Yeah. I’m fond of my rectum. My rectum is a lot like my phone. As a straight male who doesn’t have taste for buttstuff, I don’t make use of all the features. I like knowing when I have to poop, and having a place to store that poop. That was going to go away with this. I was not feeling lucky. I was feeling apprehensive. Hoe my life was about to change.

The oncology Dr arrived next and asked me what I know about cancer. Well, cancer is when one of your cells mutates and freaks out and divides uncontrollably. I was spot on, and he added that that cell has discarded the genetic instructions that tell it when to die and thus that single cell builds to form a mass that often takes years.

So essentially I have the kick ass mutant power of regeneration, but it only works on one fucking cell. This is like being Woolvareen the cheap grocery store checkout line version of everyone’s favorite mutant. Has the powers of scent, sight, hearing, touch and heart! And look at these sweet blades as Woolvareen carries a variety of butter knives to fight his foe MRIagnito.

He explained their plan of action. First 4 Months of Chemotherapy, where they pump poison into your system every two weeks in order to try and flush out and kill off any rogue cancer cells in your system to keep them from spreading. It is blunt and destructive, like killing a fly with a maul. Or a swarm of flies. But you do want to get rid of those flies.

He was less enthusiastic than the rectal surgeon. Not in my overall prognosis, but just in the fact that Chemo takes a toll and there can be set-backs as other cells start to die off and the immune system takes a hit. Not to mention the intestines.

Second would be a six week combination of more chemo and radiation therapy. Both of which were directed at the tumor. After that, after I heal up from the ravages of the combined therapy, then the surgeons will come in and excise the shrunken tumor – and my rectum. Did I mention that? They have to remove my rectum.

The final doctor was the radiologist. His bit involves zapping the tumor with focused blasts of radiation. Small focused blasts, which will not mutate me and upgrade my lame as hell superpower. I asked. Nope. I could expect a lot of diarrhea and being tired. I would have to come in But the radiation and second round of chemo would break down the tumor and make the surgery easier.

He told me that I could look forward to finding pieces of the tumor in my bowel movements. Looking forward to that. Good riddance to that prick!

My phone went off. I had been texting friends and co-workers to let them know what was going on. The ring tone is the monk chant from Monty Python’s Holy Grail. My man recognized it. It will be nice to have someone who shares some of my taste in movies. But I won’t be seeing him again until phase 2, some four or more months in the future.

We passed the time between the visits. My mother chattered away and I made dark jokes at my own expense. I always seem to laugh the hardest when I’m faced with something this soul crushing. But how else do you survive? Especially when staring the terror of the abyss.

Finally came in the Nurse Navigator. Her job is to clear the way to appointments and answer questions. We had a long talk and she was extremely optimistic. I don’t know her well enough to gauge how true that statement is. So there returns the doubt. But I shall trust. If I don’t, I’ll defeat myself. These people know their shit, my co-workers and friends all seem to agree on that.

She hates cancer, and seems to share my distrust in the possibility of a Intelligent Designer. Really, it should be Incompetent Designer. Cancer should be the only exhibit anyone needs on that count. She is also angry at our insurance industry, and trying to get peoples’ “Coverage” to actually cover the life saving services. I hope I don’t run into that problem.

“You’re not planning on self-harm are you?” NN asked as we were parting ways. We were the last group to leave the suite. I don’t know what she sensed in me, if anything, or if this is just a common question.

No. I’m not planning to self harm. I’m too lazy for that, especially with the next few months coming up where I am going to be allowed the opportunity to have a group of strangers poison me, fry me with radiation, cut me open and remove my innards. Self harm seems like a lot of extra work.

I am at where I am always at when facing something this unpleasant. Just kidding. This is a first for me and I don’t know if I am strong enough. I want to fold time and step to the a place where all the nasty work is done, and resume my life. I just want to be on the other side of the ordeal. Like the Skip Chapter feature on a DVD player. Or like the sedation, fall asleep and wake up when the worst has past. I don’t suppose that they can put me into a coma for the next 12 months… no, that would bring on a whole different raft of problems.

Monday, March 18, 2019

Schooled by a Skoolie: How many more subtitles will I need?


Ryan has the perfect observation for the whole Rowsdower adventure. “It is an awesome project, but I’m glad I’m not in charge”

Well I am in charge. Which is frightening on account of my inability to make simple decisions. Well most of the time. I did decide to buy a bus. I’ll amend that to: my inability to make smart decisions. After all, I am living in a city that I dislike doing a job that bores the bejesus out of me because I can’t just pick a direction and go.

Something about my anxiety in that. I try to make a change and then end up freezing. I’m a catch ladies. But I do have a bus.

With the roof up, the welding began as I raced time to try and get the bus closed back up before winter arrived. I fell rather short of that goal. I also still needed to grind the rust off the floors as I finished patching up the major holes. That is a slow process. Which I think will be my catchphrase from here on out.

The lift devices held quite well overnight. And the following morning I returned for more welding. There was a lot of welding. You may feel free to Insert my catchphrase here.

I had purchased around 30 lengths of square tube steel pipe. They fit perfectly into the hat channels and would become the new struts. All we had to do was hold them in place with a clamp and weld the pillars into the hat channels. A note, a hat channel sort of a U shaped beam of steel. They run vertically between the windows. We cut them, raised the roof and then inserted the new pipe into the U and welded it into place.

But we had forgotten exactly how to weld. The heat was too low and the wire speed too high. Explanation, mig welding runs a coil of wire through an electric current and uses that wire to melt two pieces of steel together. Basically you have a little gun shaped device that you use to direct the wire. My welder gives you two options, how fast you want the wire to feed, and how high you want the electric current. Simple and straightforward. Except we were having problems getting a good weld.

When it came down to welding, we were getting an intermittent connection and well it wasn’t working. We had the wire speed too high. That was our problem. Gary fixed us up and gave us a refresher. Thanks again Gary.

I got better at welding with this. Much better by the end. Turns out welding in full sunlight is a bitch, as the bright light makes your mask cut out, and really with the blast shield down how am I supposed to weld? But I got it done. Day after day when the weather was nice. I’d change into my bus uniform before leaving work and spend a few more hours making my way towards that goal.

After the uprights were all in place, I cut some angle iron(L-shaped steel) and welded that to the square tubes. They would give me a place to rivet the new walls into place.

Yeah, I welded a lot. And I’m still nowhere near finished. Next I need to get working on sealing up the Transition.

What is the Transition you ask? You know when we chopped the bus roof off and raised it 20 inches? Yeah, that time. Pretty cool huh? Anyhow, there is still that step-up that needs to be re-filled. Usually in the form of some fancy metal work. Les installed the rear hatch of an old suv into his bus Transcendence. And then welded sheet metal around it. I really wanted to do that myself. And I had two Transitions that needed to be filled! Squeee!

So we found a local auto junkyard. $2 each to get in. An hour of wandering, taking pictures and sizing up possible hatches, before we realized that we forgot our tools. Another roundtrip to the bus site. And then I bought myself the rear hatch back to a ‘74 Chevette. It was brown. It would be at home in Rowsdower(I was going to paint it, but a ‘74 Chevette, that just seems magical).

All I needed to do now was figure out how to get it into the gap, and plumb with the roof, on both sides of the transition. I had no clue how to do that, so I set it aside as it percolated in the back of my mind and got onto other work.

You know what a bus has a lot of? Aside from chewed gum and gross rubber mats. Windows.

There are a ton of ways to raise a bus roof. Two Nerds in a Bus chose to cut lower and retain the long rows of windows, as inefficient as they were. I went with Les’s aforementioned approach. But I still do like “having light and being able to see”. So I was going to be forced to fabricate some window frames myself. And install proper windows. After buying proper windows.

Not to worry, I had expected this outcome and was already thinking about it. I just needed to find some slick RV windows. And facebook was a bust.

It appears that America’s RV manufacturing industry was based around South Bend Indiana. And to my luck, there are several businesses that sell parts for RVs. I found one that I dearly wanted to visit, and I must say it was hella-cool. One day of wandering around the yard with my sister and Brigitte and I scored several windows, and a sweet stereo system. All on the cheap. Will need to return for water tanks and a door.

Once again, having the correct tools is important. I don’t usually have the correct tools. For this job I was facing making proper cuts using a freaking hand-held angle-grinder. I pride myself in my ability to adapt. And I also pride myself in my ability to bitch when my adaptations don’t pan out. Stupid angle grinder, is like performing delicate surgery with an icebreaker(the ship, not the opening salvo of a conversation, though that would have been about as effective, I’m just not a man who likes talking, so I’d rather use the ship).

I was happy with my work on the window frames. For a couple of days. Then I took a better look and realized that I might not have been quite as level as I had first thought. Well shit. But the windows fit perfectly in them and I can always just call myself an eccentric artist type.

After that, the front Transition finally clicked in place in my mind and I made it so. AT least for the Chevette door. Still waiting for spring to return so that I can finish the job. Or have one of the people who doesn’t mind heights do it for me. I hate heights. Even sitting atop a 8' wide bus that is a mere 9.5’ off the ground makes me feel a bit wiggy.

Damn but it would be nice to be able to work on this in my own back yard. But douchey city ordinances and all that fun stuff you know. And I don’t have a back yard. I guess the latter plays more into it than the former, but if I did have a back yard, those assholes would have really screwed me over.

Jerks.

Sunday, March 17, 2019

Schooled by a skoolie 3: Raise tha roof


With a few days of scrambling, I managed to find a place reasonably near by to store Rowsdower. I also got him insured, and picked up a temporary license.

The plywood was halfway removed when we moved the big guy. Taking an empty bus along the highway is a loud experience. Not rock-concert loud. But noisesome none the less. Finally got him installed in his new home.

And now I had a new problem to deal with. The lot didn’t seem to have any power. At least no jacks where I could plug in my tools. Not a worry for now. But it would be a issue for further on, for now we had cordless tools to keep slogging on with. Thanks be to Brigitte for picking up a selection!

Turns out, Rowsdower didn’t have rivets holding the inside panels. There were about 2 and a half million screws. Wide head squat little buggers. Most of which had been locked in place as long as the bolts in the seats. With my aged black and decker cordless drill I set out to remove some of those bad boys. And stripped the fuck out of more than a lot as the drill bit tore away the heads.

You need to put a load of pressure, else they strip. And I wasn’t able to get enough pressure in many cases. Fortunately I have a friend who is larger than me and better at that.

A word of caution for those of you interested in doing this, get yourself a cordless impact drill. That one tool makes a world of difference with intractable screws. Again, I wish I had known that early on. Life would have been far easier s we wouldn’t have had to cut out so many stripped screws. So. Many.

Having the right tools make a difference.

In the evenings I was watching videos and reading blog posts as I tried to wrap my mind around the next steps. Also I was trying to get a grasp on what tools I would need to pick up. And by that, I mean what welder.

I learned a lot from this lovable goof-ball. Many thanks to him.

With help though, we managed to get all of the ceiling panels down. It is amazing. A single screw with one half of an intact head(we cut half of a head off in order to break it, as it was stripped) is enough one of those panels attached to the ceiling. I ended up with somewhere around 10 pounds of screws when all the panels were out.

Finally got that last screw out. And the fucking thing was hanging by a wire.

After the panels were out, then came the insulation. Yes buses are insulated. With fiberglass battes. Wear long sleeves and a mask kids. You don’t want to get that shit on or in you.

Finally we moved onto the walls. Which was more of the same. More of the same. With the help of a wrecking crew we got the inside of the bus clear. And we were off towards the next step in the marathon!

Everyone seemed to want to learn how to weld. Who doesn’t? Summoning forth electricity that fuses metal to metal? You’re like a fekking wizard me boyo! How cool is that?

There was going to be a lot of welding. And I had neither a welder nor a source of electricity. On comes the most expensive period of bus-having to date. More so than even purchasing the freaking bus. After weeks of trying to figure out what I needed, watching videos and reading articles I settled on a Hobart 140 Mig for the welder. And these months later, I am happy with my purchase. I also picked up a Brute 8200 for my generator. I’ve already gone through 15 pounds of wire and Together they work like a charm.

Now I just needed to actually learn how to weld. Watching videos on Youtube is all good to get a sense of the theory, but nothing beats getting your hands on the project and actually doing a thing. Fortunately Gary, Brigitte's dad is an expert in metal and autobody work. And he was willing to share his knowledge. More so, he was willing to travel to the bus and and give more pointers and instruction.

My goal was to have the roof raise done, and the new sheet metal walls installed by Labor day weekend. Hah. It is the following March and the walls are only half installed at best. With hundreds of more holes to drill for the new batch of rivets.

The roofraise. I don’t think I’ve ever been this nervous in the week running up to anything. I thought I had my ducks in a row so to speak. I spent the days leading up to the raise working on patching the floor and grinding out rust. It just happened that the floors weren’t nearly as bad as I initiaully feared. There were holes around the wheel-wells but most of the rest of the steel was intact. Some of it was untouched by rust.

All I needed to do was get the holes covered. All of them. Up to and including the small buggers where the screws and bolts used to be. There were hundreds of the bastards. But with welder in hand I cobbled patches for the places where the Ohio winters ate away at the steel, and plugged the holes where the fasteners used to be. The former was far more interesting than the latter. But it all needs to be done.

I was also removing rivets. Sometimes with help and others alone. There were hundreds of them and they would all have to go before we were able to slot in the new sheet metal for the walls. I wanted as many out as possible before the roof was raised, when reaching them would be more difficult.

Finally the weekend of the raise arrived. I took the preceding friday off in order to get more work done. Ryan and Brigitte joined me and we spent the day pounding on rivets, at least until the steel order arrived. $1000 worth of steel tube and sheet metal, all to order.

Saturday rolled around and found us still working on rivets. Disheartening. Finally we said fuck it, let’s do this. Ryan crawled under the bus and put in some supports to keep the bus from shifting as we worked.

First thing we did was to install the guides. Les from the Mad Max Skoolie video has an entire channel devoted to his build. And I cripped a lot of notes from him. Firstly, I took his raise devices. 4 threaded rods with 2 bolts in the middle. The two bolts were separating a length of steel tubing with a heavy slab of sheet metal welded to the length. I’ll call them raisers, because you weld the slab to the frame of the bus, and then fit the rod inside the tubes. As you use the jacks to lift the roof, the raisers separate and you screw up the bolts to provide temporary support.

That description took all of the magic out of an ingenious device. Sorry Les.

With the guides installed, we made the cut. Cuts. Each of what had been the window frames had to be sawn in half, and then we had to cut along the roof itself. Easy right? Hah. I left that to the sawsall team of Ryan and Adam. They needed something to do, and I was about zonked.

Now the fun begins. Ryan and Brigitte are married, with a kid. So I had a rule that one of them had to remain outside of the bus at all times while we did the raise. So Brigitte took pictures as Ryan worked the jack. Take that sentence as you may.

The raise went like this. We took a length of 4”x4” timber and set it atop a hydraulic jack. Raised the roof a couple inches. Adjust the nuts on the devices, and then move to the other side of the bus and repeat. We were making fast progress. Great time. Should have worked. But for some reason the back half of the roof was rising a lot more quickly than the front.

God damn the cutting team. They missed a half inch of steel beam. And that was causing havoc. They made one last cut and the bus shifted again and settled back. Then, chastened we began the work anew. Two inches at a time, the temple roof ascended skywards. Just as the sun began to set.

It was a good day’s work.

I must say, that when the bus gets done, I am putting it on my resume. I’ve earned that.

Schooled by a skoolie 2: Rowsdower's revenge!


The first few visits were euphoric. I owned a bus. I was delighted that the bus was reasonably free of rust. The first bus I had looked at, the church one in the boonies, was wearing through. This one seemed to be solid and ready to go. All I needed to do was gut it and make it my own.

What do I plan to do with my bus?

In the real physical sense I want to transform it into an RV. Or tiny house. In the reality, all I needed to do was strip out all of the seats, pry up the floors, and remove the wall and ceiling panels, tear out the wiring and insulation. Then cut the roof off, raise it 20 inches and install new walls and transition roofs. After all that was complete, pimp the big guy out.

After all of that? I want to hit Burning man for my 40th, in 2019. I even husband some dreams about quitting my job and writing full time while living in the bus. Like an adult.

Easy as eating pancakes.

Except that I had exactly zero skills or experience with this sort of project. The entire thing would be a learning experience. The entire thing.

I had been watching skoolie videos on youtube for a couple months. And had a general idea of what needed to be done. I wasn’t looking forward to drilling out the thousands of rivets. That was going to be time consuming and boring.

Step one was to pull out the seats. This should take a couple of hours, or so the youtube videos suggest. Just get yourself a angle-grinder and a pack of cutting discs and you are set! Youtube is a filthy liar and fuck youtube.

Here is the method we used. Take a wrench and secure the nut under the east, and then attach a ratchet to the head of the bolt. Then wiggle the ratchet back and forth loosening the pair. Slow and sure.

Most of the seats are rather useless. They only have legs on the aisle side, while the window side of the seat is propped on a ledge that runs on wall. Attached via bolts I might add. Rusty bolts that hadn’t moved since the bus was built back in 2004. With little room to move.

The first several visits involved me laying face down on the seats in awkward positions and forcing my ratchet one quarter turn at a time, losing purchase on the nut that I couldn’t see, swearing as I found a new grip and starting all over again. I got help at least one day and we managed to get half of the work done in about 4 hours. In mid summer. Inside a metal box. It was brutal.

Now all we had to do was remove the bolts that were attached to the floor. Huzzah! Half done!

The friend with whom Rowsdower was staying suggested that one of us climb under the bus and that we break the bolts one at a time using the ratchet and wrench method. Two seats took 2 hours of swearing ans sweating. At that rate just getting the seats out would take all freaking summer. I decided to go another tack and cut the bolts with an angle grinder instead. Just like the youtubers suggested!

This is loud and dirty. My clothes were eternally covered in acrid metal smoke. But a couple cool pics involving sprays of sparks were taken. Then you just grind out each and every bolt – 8 per seat. I managed to get all the seats cut out with a single 10 pack of harbor freight discs, with a couple to spare!

Remember your safety gear here. Protective glasses, ear plugs and a respirator. Yeah, and last but not least, water. Stay hydrated.

The cutting took forever, but at the same time moved along quite quickly compared to cranking each and every last bolt by hand. In just a couple sessions I had managed to remove the seats, and with the help of a few friends we stripped all the padding off and hauled the steel to the junk yard to be recycled(something that didn’t even cover the cost of renting a van).

Now we were onto the floors. You ever been in a school bus? You know that smell that they all have? Sit back and breathe deep and remember. That smell. It comes from the nasty rubber matting that covers the floors. Rubber that only becomes more noxious as it is defiled by load after load of children.

As a side note, if chewed gum were worth anything on the commodities market, Rowsdower would have paid for itself. Fucking gross kids.

That rubber is the first thing that needs to be pulled up.

Pulling the rubber is a fairly simple task. And went relatively quickly.

Under the rubber mats is a layer of plywood. Thick and gross, it has been fastened to the floor by screws. In Rowsdower’s case, those screws had all rusted and the plywood would need to be pried up with brute force.

Amongst the tools I picked up when starting this project was a 18 inch flat pry bar. I figured it would be good, and work well with the standard crow-bar that was already in my possession. I was wrong. Tearing out the plywood was probably the most exhausting job on the bus to date. Doing so took hours of back-breaking labor as you leaned over a pry-bar and tried to slide it underneath the plywood. To do this, you first needed to find a crack. And after that, if you were lucky, the plywood wouldn’t splinter.

In the end I went out and bought a 36” bar. It made a world of difference! But I had half of the floors removed by that point. So, fuck me for being a dumbass and not doing that sooner!

As I pulled up more of the flooring my heart began to sink. There were large holes eaten through the steel shell around the rear tires. Holds large enough to slip a small child through. This just added hours upon hours to the job. The bus giveth and the bus taketh away.

Interlude.

Nutters out there often worry about the Federal government going about and taking their rights away. I think that’s bullshit. The feds have better things to worry about than what you do in your spare time. Unless what you do is to plan terrorist attacks, then they might pay attention. But if you want to work on cars in your back yards, it is the local folks whom you need to worry about. The assholes who sit in county boards and in city hall. They forge the regulations that directly affect your life in a very real and daily basis. And they are strict.

Turns out my friend got a letter in the mail, and Rowsdower’s fat ass had to be moved. Else fines were going to be levied. This freaked my friend out. And it sent me into a spiral of depression and anxiety. As stressful as the project was, it was also a lot of fun and extremely challenging. I was doing something interesting for the first time in years.

Nobody else in my circle was able to host it, except my folks, and they live 2 hours away. The bus is a time consuming project and I was largely doing the labor after my day job, not to mention getting help from friends who wouldn’t be nearly as willing with a 4 hour round trip drive.

I was afraid I would be forced to sell my bus.



Saturday, March 16, 2019

Schooled by a skoolie. Part the first.


I came across a video on youtube where a dude converted a bus into an RV, and I fell in love with the idea. With a couple of friends sold on the taking a bus and converting it into an RV for our roadtrip in 2019. (I am the wrong kind of stupid) I began searching for a bus. Yeah, I had to talk other people into this project, as I was already well over my head. More on that later.


I strolled about the interwebs for months trying to land a proper bus with the features I wanted. Flat-nose, rear-engine, 40’ long. There are always a ton of buses available, but most of them don’t really fall into my price-range of super-cheap, while not being about to shake apart in a light breeze.

Because I am either dumb or delusional in my belief that I can find both good and cheap.

I had a list of sites that I checked daily and I began to get really antsy and anxious. There were a couple at a place out in Maryland. I could buy one, take a flight and drive it back through DC traffic the 20 hours across country. Man that sounds like a bad idea. I ended up on facebook market-place as the days ticked by. Desperately combing the ads for a bus that would fit the bill. Facebook marketplace, insert Mos Eisly Cantina reference here. It fits.

But luck was with me, I came across a bus with the features I wanted. And in my price-range. A big red monstrosity that had once been a church bus. And the owner was a mere hour to the north, and had intended to build a skoolie himself and his family. That fell apart and he was now selling, but only after he had put in some of the basic work. Huzzah. I made an appointment for the following Sunday.

He was cash only, as are most of the denizens of facebook so I stopped at the bank and withdrew the cash when we were on our way to comic-con. And then spent the rest of the day weaving through rivers of strangers with one hand in my pocket as my shoulders cramped and my mind was wrapped in a gauze of paranoia. It was a long day.

The following sunday, in the company of a couple friends, we ventured north to take a look at the first real lead in our exciting new world! I was going to get a bus. Maybe. Mostly I was worried that I was going to be robbed and then get Ned Beatty-ed. I don’t have an opinion about the relative attractiveness of my mouth and to this day I am perfectly content to remain in blind ignorance about what the general populace might think.

The bus made me uncomfortable. The breaks were odd, the engine was leaking oil, the front step had rusted out and he had cut all of the legs off the bus seats, leaving the feet that would still need to be removed. We gave it a test drive and told him that I’d think on it. I thought it made me uncomfortable and I would pass.

He sold the bus to some other taker. Good luck to both of them, but I was back where I started. Then I found an auction site for local governments. Hot damn! And they had whole load of buses. All over the country! I bid on one in Eugene Oregon, all my features, and no rust. I was already cobbling together plans to fly out and drive it back. I have a friend who lives in Eugene, I’d like to drop by and see her. Fortunately, as the much shorter Maryland trek would have been an endurance job, the Eugene bus quickly taken away by aggressive bidders.

I ended up buying a bus from a school district in Toledo Ohio, some 3 hours drive from my home. I put in my bid and my nerves grew more and more strained as the countdown ticked closer to zero. How am I going to get this thing? I need a ride over. Do I have to insure it(yes, theoretically, but finding bus insurance is insanely difficult for individuals)? What would happen if I got stopped by the police, as I don’t have a special driver’s license? Did I need a special driver’s license just to drive an empty school bus across state?

I won the auction. $1500. I was already stewing in anxiety. Where was I going to keep this thing? I had already named it. Rowsdower, after Canada’s greatest action hero. I set to trying to work out the details.

Shit. I just bought a bus.

Late June and the weather was a humid 90 degrees, a good day to drive across state. Fuck the Midwest. But with paperwork in hand I set off with a friend across state to go and see my bus for the first time and bring it home. Like a proud, frightened nimrod who makes poor decisions. Like myself.

Rowsdower was in fantastic shape and sitting down in the driver’s seat made me feel excited as I imagined the possibilities.

Buying the bus was a learning experience. Firstly I learned that my bus could hit 70 on an open highway. Secondly I learned how to drive a bus. Did my bus have air-conditioning? That was my first question. And yes it did, when you opened the windows and got onto the highway. More importantly, did my bus have cruise control? I forgot to ask that. The answer turned out to be yes, I discovered on my own a month later. Hey, looking over your shoulder through the rear window? Like you do when driving a normal car, well that isn’t feasible with a bus. You stick to the mirrors buddy and you’re gonna like it.

The drive back was long and challenging. I tried to keep behind semi-trucks as Rowsdower plodded along the highways. That way I was able to keep a constant pace, and maybe even draft a little and ease up on the fuel consumption. What seemed like a week later, we finally got back into town just in time for rush hour traffic.

Another friend had offered to store the bus on his property north of town. He was in a residential neighborhood, but off the beaten path. I had never been there, but the friend who had gone on the Toledo adventure with me, he knew where it was.

Mostly.

We passed the driveway. I learned something new, backing up a school bus in a quiet suburb is not easy. It is very hard. Especially for yours truly. But alas, Rowsdower was safely ensconced in his new home! I had accomplished a major feat and achieved a goal.  And the rest of the night was mine to relax. Soon the deconstruction would begin.